Saturday 11 March 2017

Aim not to be a great person when being a good person is so much more important

Hey guys!


I haven't been blogging for quite a while as I've had lots going on in my own life and I haven't had much time. Tonight however I feel ready to post a blog that has been in my mind for quite a while.


We are all our own people. I am my own person. To each person in my life I am a different person but to me I am one person. Some people know me as that girl who walks around college in weird jumpers and glasses while others know me as the girl who wears madly bright lipstick on nights out. To the kids I teach in Sunday school I'm probably that old boring teacher and to my elders I'm probably a young head the ball!


Through this blog I have opened up a lot of my personal life to you all, yes this has it's adverse effects however I do this because I feel that sharing is caring. Sharing my story may help others and therefore it is of use so that is why I do this.


Over the years I have faced many physical health problems and mental health problems, names have been given and taken away, I have attended many different hospitals and it was only a few days ago that I received my most recent diagnosis. So for all those who are reading who aren't sure what 'problems' I have to see whether they can relate or I can help you then I'll give you a quick brief.


I was born a sickly baby. I was three weeks old apparently when I first got sick. I had severe reflux when I was a child leading to a lot of vomiting daily. I was diagnosed with Type One diabetes at the age of 8 after nearly losing my life due to being incredibly sick. I was diagnosed with major scoliosis of the spine when I was 12 and underwent a major spinal surgery when I was 13 to have rods screwed onto my spine to help this. I have suffered from crippling anxiety since I was 3 years old. I spent eight months in a psychiatric inpatient unit when I was 16 due to severe depression, self harm and multiple suicide attempts. In the past year I have been diagnosed with a hiatus hernia, a digestive disorder linked to gut dismotility, background retinopathy in my eyes and Polycystic Ovary Syndrome.


That was a brief run down of my medical and mental health disorders that have lead me to be here talking to you all today. Let me tell you, as hard as my journey has been it is an absolute honour to be able to take my knowledge, experience and empathy from my journey and apply it to helping others.


I get asked a lot, how do you cope? A lot of people say to me 'Oh my word I couldn't inject myself everyday' or 'I couldn't be on that strict diet' or 'How did you cope for 8 months in a loony hospital'. Trust me I don't get annoyed or judge those who say these things to me. Heck yeah I understand if I hadn't experienced what I have I'd probably be saying the same things if I met a medical mystery like myself!!


My answer however is this. I'm not a perfect person and I never will claim to be. I'm not a hero because I have lived with pain, because if that was the case we'd all be heroes because we all live with pain in some form or fashion. I'm not weak either, I'm not a victim of what has happened to me. I won't ask you not to pity me but I won't ask you to pity me either. Yeah some days I feel sorry for myself and I'm like darn a bit of pity wouldn't go a miss right now but then there are other days when I'm like do you know what look at me go I don't need pity I am blessed with everything I have. So many people have such strong opinions on how people treat them when the truth is people are only trying to help and take in your problems. It must be really hard to hear about all my problems and automatically not think jeepers that's a mad amount, because yeah it is! But hey, I have the ability to love and be loved, I can walk, I can smile and I can help others!


There are many days where I curl into a ball, don't want to get up and face my problems, I'll cry, I'll ask why me? I'll feel sorry for myself. There are many days where I'll get up power through, be so happy, and use my experiences to help others. There are some days which are in between and I won't impact others but guess what? That's okay!


No one is perfect in this world! No one is always right (however much I want to believe I am), No one is always wrong either! We all share this world together and we all have ups and downs!


I will admit I have been through a lot of years of therapy and still probably could benefit from more. Growing up with constant sickness and pain is lonely, I missed out on friendships, I lost out on normal schooling, I missed a lot. But at the same time I gained so much that others never will, I learned empathy and patience at such a young age. I learned how to cope with a panic attack, how to deal with severe pain, how to be independent with my medication and how to be there for others at a very young age. These are life skills that will stick with me forever.


One thing that never changed with me is my determination. At certain very low points my motivation quivered but that is different from my internal determination. I have gathered the strength that I have today from years worth of fighting.


When I missed out school, I was home schooled or else I tutored myself at home. If you think getting motivation to study in class is hard then I can tell you it's extremely hard to motivate yourself whilst sitting in your own living room. I studied for my GCSEs whilst being an inpatient in hospital and losing someone very close to me to cancer. My textbooks are still stained with the tears I cried into them whilst trying desperately to learn kinetic theory. The nurses used to come round at night and take the textbooks off me and turn out my light because I'd be studying in between therapy sessions and any other moment I got. I didn't achieve my A grades because 'I'm smart' I achieved them because I worked my backside off to get them.
After my back surgery I went through 9 months rehabilitation to learn to do all the normal activities again. I temporarily lost feeling from my hips down due to an epidural error in hospital and had to teach myself to get up and walk normally again. It was agony, agony is an understatement, I remember screaming into the hospital pillow at 3am in agony as the nurses gave me the strongest painkillers they could. But I fought and I didn't let the pain stop me, I went back to part time study only a few months after my surgery and I carried on.


A lot of lessons I learned the hard way. I felt a lot of things that no child ever should and I was in situations that were incredibly scary. I had to sign a form at 13 to agree that I was aware that I could die on the operating table. Imagine signing at that age to agree to knowing you could lose your life and having to do it anyway.


Some people wonder where my sensitivity comes from, why I cry easy, why I want to help others, why I see things so philosophically, this is why. I have lived through a lot in just 19 years. I never ever want to waste that. I believe everything happens for a reason and God obviously wants me to have all these challenges so that I can help others and show them that everything is possible when you believe and when you fight. I'm telling you I know that fighting is hard. I know that especially in teenage years that doing drugs to go to a chilled state, or smoking to deal with your pain or drinking until you are numb seems a lot more appealing than being a bore and 'missing out on young years.'
You may not want to listen to older people but please take it from someone who is your age. There are other ways of coping, pumping illegal substances into your beautifully made body is not right, is not cool and you will regret it. Get an education, love those around you, be classy, be respectful, always apologise when you have messed up. DO the right thing. Don't let your ego stop you. You never know what tomorrow holds or what each person has been through. Use your life, use your brains and heart to make everyone around you feel as good as they can. Because at many points in my life I was very very lonely, I genuinely felt that I had no one but myself. I have sat staring into the mirror telling myself at 8 years of age not to end my life. All I needed was empathy.


Don't go round breaking hearts, don't go round damaging yourself. Don't hide in a group and don't ever believe that popularity will make you happy or sleeping around will make people want you. Be an inspiration, be motivated, fight through blood sweat and tears for your dreams because I promise you if you fight hard enough you will achieve them. I have so many qualifications to my name and so many more to gain. I have travelled and will travel more. I have loved and had my heart broken but I will love again and I will not hold grudges against those who have hurt me while trying to find themselves.


Be the best you that you can be.


Aim not to be a great person when being a good person is so much more important.


All my love,


E x



Wednesday 9 November 2016

The "Grey Area"

"What's the point?"


A question that a lot of us face at least once a day.


For someone with a mental health difficulty this question can pass through our minds at least one hundred times a day or may be there all the time.


So I want to talk about this thing called the "grey area". The Grey Area is a state of mind that a lot of functioning mental ill health sufferers live in. Sometimes known as the "Grey suicidal area".


For myself for example, I spend most of my days in the grey area. I can get up and eat, wash, dress, go to college, talk to friends and generally function well. However inside my thoughts don't always match how I'm acting. This isn't the same thing as feeling depressed or suicidal and trying to cover it up so no one finds out, no, this is a genuine living state where these thoughts are just constantly in your head but you're able to carry on with day to day activities.


The grey area is having thoughts of life not worth living, asking yourself constantly what's the point? Why have I not ended it already? Even having thoughts of harming yourself, but not actively carrying out these activities. It's learning to tolerate the thoughts and survive a life even with these torturous thoughts.


This grey area might last until I turn 21, I might wake up tomorrow and it's gone or it may last my entire life, this is just part of my condition.


Some days I have to lie in bed and cry until I don't have any more tears left. Some days I have to powerwalk a ridiculous distance to try and put the anger of the voice in my head into some form of action to attempt to quieten it down. Some days I can function completely averagely and not question the thoughts in my head. But they're always there, 24/7, always.


This sometimes doesn't make me the best of company. There are days where I will have a short temper and no one will know why I'm snapping at them, however if they realised living with these thoughts and trying to have a conversation with someone is like trying to hear the TV with kids screaming over the top of it they may then understand actually I'm not snapping at them I'm getting angry with my own head but randomly yelling "SHUT UP" in the middle of the street at my head when no ones standing there may look a little odd.


Living with OCD, generalised anxiety and depressive states is not easy. This is also relatable for those with physical ill health too as I know living with T1 diabetes, rods on my spine and a digestive disorder is not easy either. For those with either or both I understand and empathise fully with the fact that you will get down days. You will get days where you ask why me? And you need to understand that it's okay to have these thoughts. It's okay to be fed up and feel like it's not fair. We can't be warriors everyday, even heroes have to take off their cape and let someone save them once in a while.

I spent a lot of my childhood feeling guilty if I had a thought that resembled "why me?" I thought I wasn't allowed to ever feel sorry for myself, to ever feel that I got it a little rougher than some. But as I grew up and went through therapy I realised that it's only healthy to once in a while have a mini meltdown. It is okay to not be okay. And there are many unpleasantries that can be lived with. This is just a thing. A thing that can be lived with.


If you feel that you are in the grey area and it's turning a little black, ask for help, hold out your hand until someone grabs on because someone will if you give it time.


If you live in the grey area and ask yourself why can't my life be white, well, I ask you, name me a good story that has blank pages?


All my love,


E x

Monday 29 August 2016

Never let the final straw be the final straw when it comes to life 💖

Hi Guys:)!

So I'm currently sitting on my picnic bench in my garden listening to music to try and chillax! The past few months have been a major struggle with my chronic tummy problems. I rang the hospital and I'm on a ten month waiting list to see a gastroenterologist to help me manage day to day life. It's got to the point where every day my tummy is so swollen I can't breathe, I'm so tired I spend hours sleeping just to function, I'm on omeprazole, ranitidine, mebeverine, colpermin, panadol and sometimes buscopan and ibuprofen just to get the pain to a level where I can go to town for an hour or two and not be crippled.

This in turn has had a major effect on my diabetes. I'm on a trial period using a new piece of equipment called the freestyle libre which is a mini disc that has a canula injected into my subcutaneous tissue and reads the blood glucose through the fluid rather than cappillary blood to lower the amount of finger pricks I have to do in a day. My diabetes is really well controlled in general but the graph on this reader is showing my sugar levels are dreadful at the moment. So many high and low readings which in turn have caused blood vessels to burst in my eyes, numbness in my fingers and overall a horrible feeling.

The only way to manage this any longer is to go to A&E and refuse to move until I have a diagnosis but even that proves complicated as the doctors always think it's my appendix and so far it never has been.

My anxiety and mood has been knocked dramatically as I can't physically imagine living my life like this. The feeling of not knowing what friends can put up with a friend who is so often in bed or hospital sick. Holding down a job is a scary thought, completing my coursework is a worry because some days I just don't want to have these issues and some days I wish I could go out and work hard and not be in pain but why think like that? This is the life that I've been given and life is a blessing, one to never be taken for granted.

So the best things I've been doing recently to cope and some of you may find this helpful others not but these are just ideas.

If I get any energy I go for a walk and never waste a good day. If you've been blessed with a good day never ever waste it because the memories of that good day can help you through two months of bad days!!

If I feel lonely I text/ring my friends. Don't isolate yourself anymore than you must, stay in contact, make new friends because trust me I know you feel like a burden and that no one needs your issues but there are so so many lovely genuine people who look past your illnesses and see you, the real you, your likes and dislikes, food movies sports whatever they care about you and you are never alone in this world.

If you can't get to a party heck blast your ipod in your room and sing your heart out.. It works.. I know from experience!

On a serious note if there are days where you've just given up because that happens, and you feel you can't take anymore or that you don't want to spend another day living, tell someone. I plead with you. I have been that person sitting at midnight contemplating which choice to make. Trying to find a strong enough reason to make me stay alive. I know how hard and lonely and heartbreaking chronic illnesses are. To this day I would lay down my life for anyone needing help. You would be suprised who would sit up at 3am with you just to prevent you doing something irreversible. This world has evil in it, but this world has so much love.

These are just a few tips to help your fight. If you don't know me on a personal level these messages are still for you. I can see where my audience comes from. I have 3000 loyal views which come from indonesia, the Netherlands, Russia, Australia and so many other countries. If you are sitting reading this in the furthest place away from me on earth, I'm still here and still a human and I still care so never say no one cares about you because I do.

If you are my friend and don't want to let me know you read my blogs but any of these issues effect you, please don't sit quiet or nervous, if it's 3am I will still sit up to help you if you need it!

All my love

E x


Wednesday 10 August 2016

H.O.P.E

Hi everyone:)

So tonight I'm going to talk about a topic which tends to not be spoken about because it's embarrassing.

I tell everyone I have a digestive disorder because to be honest 18 years later the doctors still can't diagnose what is precisely wrong with my tummy they just know that my digestive system and bowel do not function normally. They think it is IBS but so far they can't rule out IBD without further investigations.

Out of all my illnesses this is by far my most disabling. At the moment I'm going through a flare up. Every day is a struggle. I can't remember a single day I have woken up in my entire life without feeling sick or sore due to my tummy.

Everyday I swallow so many tablets morning noon and night. I take strong painkillers and sometimes have to take antisickness pills to keep the pain relief down. If it gets so severe I end up in a&e on a drip.

An IBS flare up is so severe that some women compare it to childbirth. Not all but some. Whenever I have one I can't breathe, I can't move and sweat beads roll off my face. I have sat screaming for six hours straight before from the sheer agony I am in. I sit in one position so long as I can't move a muscle that I get nerve pains in my legs. It gets so severe that most times I throw up just from the pain.

Any time a doctor sees me they send me to a&e incase it is my appendix but it never has been so far.

 This is a very lonely and scary illness. The idea of getting out of bed with extreme fatigue is unfathomable. The idea of leaving a bathroom is unthinkable.

I have had every blood test, ultrasound, tubes, endoscopies, barium swallows and x rays that I can have.

This is a topic that needs more support and awareness! Chronic illness is so lonely and debilitating but I refuse to give up and I will continue to raise awareness!

Never give up no matter how lonely or how much pain you are in, you are loved!

E x :)

Sunday 4 October 2015

Hey Hi Hey Hello there

Hey guys!

It's been ages I'm so sorry!

How have we all been? Everyday more people from different countries view my blog so to everyone new a massive hello and welcome to my blog! Feel free to comment!

I have been doing really well, I have started College which was petrifying but I'm getting there! It's new and refreshing! Plus it's Medical Science, how amazing?

I GOT DISCHARGED FROM OUTPATIENT CAMHS AFTER A DECADE!

It is petrifying and will take me a while to get used to but I can do it, today has just brought back all the memories but that's normal right?

Stay strong, talk soon,

Love always, E x

Thursday 6 August 2015

"Why must we be so cruel?"

Depression.. heartache... pain... hopelessness.. loneliness.. doubt... fear... obsessions... compulsions... deflation... anxiety... worry... emotions... agony... betrayal...


Everything that I currently feel in my heart, chest, head, mind, and every other part of my body and soul. Little words have the power or ultimate passion to even partially explain the hurt of emotional distress.


I smile, I try, I support as best as I can. Not good enough. I dedicate my life to trying to assist others so that they are protected from the sheer terror of emotional agony. I never ask for a reward. Of recent people seem to think it's okay to rip me apart, to take my personality and to pick it to pieces and criticise. To judge me. And I'm left here asking myself why? :'(


I forgive more than I ever thought was possible, I always say never give up yet I'm sitting here trying to find a reason not to.


Why must we be so cruel? Why can't we all just be a little kinder? Why must we be filled with anger and meanness?


Be kind to those around you dear readers, you never know how much that one bit of kindness can save a lost soul. Offer a helping hand and don't be wicked. No one deserves to feel unwanted. No one.


Thank-you as always,


Erin x

Tuesday 28 April 2015

"I will hold myself to a standard of grace, not perfection."

Good morning, afternoon, evening and night to you all! As my blog has now gone global I have many readers from different countries meaning different time zones so hello!


It has been agesss since I last posted but I have been studying hard for my psychology exam and have been unwell with different viruses which were yucky so that is why!


Today I wish to talk about life changes.


Whether it is leaving primary school to join secondary education, whether it is applying for UCAS or deciding which career path to go down, changes can be very scary, especially when you are young and don't have a lot of experience in that area.


So I myself am in this situation at the moment thinking which career is right? Which university? Have I applied for the correct course at tech? When do I want to travel? Even which car to buy can be stressful! Choice is daunting but can be very exhilarating at the same time so take a breath and know that it isn't the end of the world and very few things are finalised that can't be changed or altered, you will learn from your mistakes and choices no matter what!


Three simple tips!


Tip number 1.) Draw out a career ladder. I find this really useful. Get a piece of paper, simply draw a ladder from top to bottom on the page. The top of the ladder is where you want to get to, your ultimate goal, the bottom is where you currently are and what qualifications you hold. All the space in between is for what qualifications and skills you need to gain to reach your goal in chronological order. I find having a plan clearly drawn out in front of me, not including too much detail, can really help me relax and feel in control of the situation again!


Tip number 2.) Research, research, research! Whether it's which university, which car, which holiday or even to save or to spend, trust me, the best thing to do is do a lot of research. Know what you are talking about, whenever you go to purchase a product you want to feel confident and able to ask the sales person questions and not feel like they are pulling the wool over your eyes, know your rights, know which course suits your needs, know all your information and it lowers the stress on the day when you have to decide. Trust me, after a while you will know the information so well that you could be the salesperson or university lecturer and will feel confident in your decision with less doubts.


Tip number 3.) Don't feel embarrassed or ashamed to ask for help. There has been many people before you going through the same change in life or the same decision making process and it really helps to talk to someone in person about the reality, the pros and cons and not just what it says written on paper. It can really help hearing different opinions and may actually change your mind dramatically once you hear what each path contains and where it can lead. Ask your mum, or spouse or teacher or peer mentor, but don't be stubborn and feel it makes you look stupid, it doesn't, it makes you look wise.


It really is so stressful having to make such big decisions for your future, especially at this time of year when we're all getting prepared to sit exams but I hope these few hints and tips may make you think or may help you along your journey.


I read a quote this week which really made me think .. "I will hold myself to a standard of grace, not perfection."


Hugs, E x